Some Kids Fight with Cerebral Palsy Every Day; Who Do You?

Cerebral palsy(CP) is a group of disorders affecting development, movement and posture causing activity limitation in children. These disorders are attributed to injury to the brain before, during or after birth. These show as disturbances of sensation, cognition, communication, perception,drooling problems, seizures and/or behavioral disorders in affected children

CP has been classified based on the type of movement disorder (spastic, athetoid, ataxic, and mixed) and area of the body involved (hemiplegia, diplegia, quadriplegia). Children having cerebral palsy find it difficult to achieve milestones such as rolling, social smiling, crawling, sitting, standing, walking etc at the expected age. For instance, a normal child typically starts rolling after 3 months or begins crawling at 7 or 8 months after birth, but a CP infant may show significantly delayed milestones achievements.

Such special children fight their own battle everyday to do what we take for granted like lifting a glass, walking or smiling. They struggle to achieve the smallest improvements if at all on a daily basis to acquire the skills to conduct such basic activites all of which we take for granted. They need your support as family,friends and society. This is the battle for support which we all need to fight for them.

At SRCF, we have a specialized set up for special children with all required materials and equipment to support their rehabilitation. Our team of experienced physiotherapists, occupational and speech therapist provide holistic care in an effort to make the child as independent as may be possible.

To know more: Email us on hello@src.foundation or call us on +91 8380087035.

Victory Arts Foundation For SRCF

Sanctus Rehabilitation Care Foundation (SRCF) along with Victory Arts Foundation, founded by Shiamak Davar, the world famous choreographer and dancer, through their Dance For Good Program, conducted a joint show for the day care residents of SRCF’s Waonworie, Centre on 20 February 2016.

This was a well attended and all our senior citizens friends and families had a good time. We hope to do more such shows in the future.

SRCF supports Persons with Dementia (PwD) at the Elder Day Care Center at Wanworie. Through an activities rich program, it seeks to create a supportive environment during the day. Such an approach is known to delay in the decline in the condition of PwD and is a well accepted approach globally.

Call us on 959515 7011/8380087035 to get more information or email SRCF on hello@src.foundation or see www.src.foundation

Life Story activity programme at SRCF

Our lives may be reconstructed from our memories. We are what we have lived. This is our identity. With or without the help of pictures, certificates, music or souvenirs, we live and do as the people we know we are. What do you do when you begin to lose, or not know, who you are?

In December 2015, Shikha of Caregivers Link got in touch with us at our multi-activity and day care centre for seniors at Wanawrie in Pune. Caregivers Link is a social venture focusing on care relationships with the intention of designing and offering solutions and services across multiple care circumstances.

We have found much in common in our approach to work. This has led to their designing a pilot activity project for us, based on Life Story work processes, that we refer to as ‘Meri kahani’.

As described on the Caregivers Link website:-

‘There are many ways by which people are trying to address such issues of loss of self, of memory and identity. Many of the currently practiced ways, some still evolving, are within the framework of therapy, or take the memory clinic approach, tackling issues viewed as some form of disorder.

Then there are personal ways. These are home grown, generally practiced within informal family settings, close relationships, dependent on the people involved in these relationships, on the time they have to spend with each other and on the quality of that time spent together. So sometimes there is conversation, reliving happy times, looking at old photographs or a collection of matchboxes, talking about shared memories that lead to story sessions.

These are Life Stories. Each of us has them. Our life stories are who we are.’

Based on this concept, our programme is evolving into a structured activity effort. Read more about this programme here. Tell us what you think. We would like your feedback, thoughts and suggestions.images__11_

SRCF Impact: Great improvement in a 72 year old elder’s behavior.

Our Patient Story: A 72 year old resident of Viman Nagar, Pune joined SRCF’s Elder Day Care Centre on 07 Dec 2015. He was born in Karachi (Pakistan) in 1943 and shifted to India on partition. His mental development was improper since childhood as he has had a history of head injury.  Although, he is in good physical health and is able to take care of all his daily activities, he has problem of memory retention, recalling events, and often feels disoriented as regards time and place. He has problem of judgement and has limited problem solving skills. His relatives mentioned that he was unable to sleep at home at night even though he was on sedatives, once during the day and one before sleeping.

When he joined our centre, he was restless and complained of headache, flatulence and insomnia, all of which were psychosomatic in nature. This was affecting his diet. His family was unable to find what to feed him – everything seemed to cause more bothersome gas and headache.

After joining SRCF Elder Day Care Centre he was put through a creative use of physiotherapy equipment to treat his psychosomatic symptoms of headache, gas etc. Since joining, he has increased his exercise time to include stationary cycling and has commenced the weekly yoga session. He is eating better and is less worried about his symptoms which have reduced significantly.

The nursing and activities team engaged with him with simple jigsaw puzzles. His ability to do more complex puzzles has increased in the supportive environment at the center. He also spends some time on creative activities like using color pencils, crayons and is keen to show his art work to everyone.

He has become comfortable traveling every day to and fro to the center at Wanworie from Viman Nagar and over time, he has been able to increase the number of hours that he spends at the center.

His family members in consultation with his treating doctor stopped the afternoon dose of sedative so he is more alert and willing to participate in activities. He returns home every day, more peaceful and willing to sleep. He has started sleeping well through the night.

Team SRCF is happy that his family also get rest during the day and are able to pursue their own interests. They too now sleep peacefully along with the patient through the night, something that had become a distant memory.

If you know a person who could benefit from the services we offer, or if you have someone at who who need some support, please contact us: Call us at +91 9595 15 7011 Or Send us a email with your contact details at hello@src.foundation

Cognitive and Memory Training Activities:

What is memory training? Many people have trouble remembering things. Whether it is simple items on a shopping list, or the complicated plot of a movie or book, memory comes in handy every day, and when remembering is difficult, it can affect all aspects of work and life. This loss of memory is compounded in Alzhimer’s patients since they tend to lose the recent memory more than long term memory, so that they may remember everything about their childhood, but may not recognize their own wife and children.

In most cases, memory training isn’t complicated. It just means improving patient’s ability to remember. Research has shown that when people keep their minds active, their thinking skills are less likely to decline. So games, puzzles, and other types of brain training may help slow memory loss and other mental problems. One study, reported on WebMD, involved more than 2,800 adults who were 65 years and older. They went to up to 10 brain-training sessions for 5 -6 weeks. The sessions focused on tactics for these skills: Memory, Reasoning and Speed of processing information. The study found that people who took the training showed improvements in these skills that lasted for at least 5 years. Further, they also improved at everyday tasks, such as the ability to manage money and do housework.

But do these exercises; prevent Alzheimer’s and other Dementias? Does brain training really help?

One study found that exercising the mind delayed decline in thinking skills. Also, after people started having Alzheimer’s symptoms, mental decline sped up in those who kept their minds engaged. It is possible that being mentally active bolstered their brain at first, so symptoms didn’t show up until later. What this means is that people who regularly challenge their minds may spend a shorter part of their lives in a state of decline, even if they do get Alzheimer’s.

There are different levels of memory training, and many different methods are used, including:

  • Eating right and physical exercise
  • PEG Lists, Mnemonics, Mental Maps etc
  • Sudoku, Crosswords, Memory based Board and Card Games
  • Tab or computer based or video games which challenge memory such as forcing the player to remember directions, faces etc

Memory training provided in one on one individual session, works by targeting weak memory centers in the brain to make them active and strong. A brain with even one weak cognitive skill is like a shopping cart with a busted wheel. You could do your shopping with it, but it will take longer, and be much more frustrating. And if all four wheels are broken, you will have to carry the cart around the store, which is completely inefficient. Similarly, if all your cognitive skills are weak, learning will be next to impossible. Cognitive skills enhancement programs, including memory training, fix the wheels on the shopping cart so that a person can function without impediment.

Our team will provide both group and one on one session to elders with declining cognitive abilities. Besides the team, we have the tools, physical, digital and online to support memory enhancement of the elders.

Elder Day Care Center: Who can benefit?

Our elder day care center is ideal for elders with working family members & spouses who need respite from care giving during day. Further, in combination with our home care services we are able to support the elders during the night as well.

This allows truly professional rehabilitative services to be delivered without completely taking the elder out of the comfort of his home and family. In a survey, it has been found that elders living in old age homes and assisted living facilities can feel very depressed and this is often true for a majority of residents. A combination of day support at a professionally center and night support with a trained attendant/nurse at night without having to consign elders to an old age home will work for those who are aware of the reality of Indian Old Age Homes and Dementia Management Centers.

Such an approach will help patients with Dementia, Alzheimer’s, Parkinsonism to delay progression of such degenerative diseases. Besides, our physiotherapy services also help recovering stroke patients and in others create a feeling of well being and reduce the decline in health for those with degenerative diseases.  Therapeutic activities, group and individual will create a sense of well being, reduce stress and help in elders regaining some confidence.

In fact, generally healthy elders who need close medical monitoring, support and feel that they need physical, mental & social stimulation through companionship will also benefit.

Call: 95951057011, 8380097015, 8380077010

Email:hello@src.foundation

Website: www.src.foundation

How to manage your Diabetes?

Diabetes can never be cured, however it can be managed with maintaining the following –

Taking regular Medications
Regular Exercise
Follow a Healthy Meal Plan
Monitor Blood Sugar Regularily

 

How Is Physical Activity Is Useful?

Physical activity moves sugar from your blood into your cells. The more active you are, the lower your blood sugar level. This is one of the ways you can manage Diabetes.
Remember that physical activity lowers blood sugar. Check your blood sugar level before any activity. You might need to eat a snack before exercising to help prevent low blood sugar if you take diabetes medications that lower your blood sugar.

Benefits Of Exercise

These five benefits have a DIRECT bearing on how successfully you manage your diabetes. Exercise also has other general health benefits – you sleep better, your mental state improves, etc.

Most experts say you should do exercise on at least five days of each week. Each session should be of moderate-intensity and should not last less than thirty minutes. The following activities could be classed as of moderate-intensity –

  • it helps control your blood glucose
  • it helps keep your weight down
  • it helps keep your blood pressure down
  • it helps raise your HDL (High-density lipoprotein), good cholesterol levels
  • it helps lower your LDL (Low-density lipoprotein), bad cholesterol levels

How Much Exercise Should You Do?

  • fast walking
  • swimming
  • cycling 5-9mph (level terrain, perhaps some slight hills)
  • dancing
  • rowing
  • mowing the lawn

What Is Moderate-Intensity Physical Activity?

  • You should experience some increase in your breathing rate
  • There should be an increase in your heart rate
  • You should burn 3.5 to 7 calories per minute
  • You should reach a METs of 3 to 6

How To Track Your Blood Sugar

  • Test Your Blood Sugar regularly
  • Record your Blood sugar readings in the Diary
  • Identify the Blood Sugar Patterns
  • Use your Blood Sugar results to adjust your diet and Insulin
  • Take help of your Doctor and Diabetes Care Team
  • Diabetic Card. Carry a card showing your name, address, telephone No, diagnosis, details of medicines, and last recorded blood sugar level.

How To Manage Diet In Diabetes?

Three things will have a major impact on your blood glucose and blood lipids (cholesterol, triglycerides) levels

  • What you eat
  • How much you eat
  • When you eat

 

Recommended Diet

  • Carbohydrates: 55-65%
    • mainly complex carbohydrates
  • Fats: 20-30%
    • saturated 10%
    • poly-unsaturated 10%
    • mono-unsaturated 10%
    • cholesterol < 300 mg/day
  • Protein: 12-20%
  • Sodium: < 6 g/day
    • hypertensive diabetic< 3 g/day

 

Sample Of Diet Chart

Morning Tea Breakfast(8.30-9AM) Mid Morning 

11 AM

Lunch 

1.30PM

Afternoon Tea 

4.30PM

Dinner 

8 PM

10 .30PM
1-2 cups tea or coffee  ( no added sugar)  2 wheat chapaties/3 pieces of brown bread 

1 small piece of cottage cheese (15 gms)/ /1 egg whites

½ cup cooked mixed vegetables

1 cup of tea/coffee without sugar

1 Apple/Guava  · 1 cup of strained clear soup. 

· 2 wheat chapaties

· ½ cup rice

· Cucumber,tomato,carrot, onion salad

· ½ cup cooked vegetable

· ½ cup cooked dal

· ½ cup dahi ( skimmed milk)

· Grilled fish/chicken-75gm

1 cup of tea/coffee without sugar 

2pieces of marie biscuit

5-6 nuts

1 cup of strained clear soup. 

2 wheat chapaties

½ cup rice

½ cup cooked vegetable

½ cup cooked dal

½ cup dahi

50gm cottage cheese

 

½ cup of skimmed milk

 

What is Prediabetes?

Prediabetes, is also known as “impaired glucose tolerance” or “impaired fasting glucose,” is a health condition with no symptoms. It is almost always present before a person develops the more serious type 2 diabetes. About 79 million people in the U.S. over age 20 have prediabetes with blood sugar levels that are higher than normal, but are not high enough to be classified as diabetes.
More and more, doctors are recognizing the importance of diagnosing prediabetes as treatment of the condition may prevent more serious health problems. For example, early diagnosis and treatment of prediabetes may prevent type 2 diabetes as well as associated complications such as heart and blood vessel disease and eye and kidney disease.

 

Who Should Be Tested For Prediabetes?

You should be tested for pre diabetes if:

  • You’re 45 years of age or older.
  • You’re overweight with a BMI (body mass index) of 25 or over and have any of the following risk factors for diabetes:
  • You are physically inactive.
  • You have a first degree relative with diabetes.
  • You have a history of gestational diabetes or delivering a baby that weighed more than 9 pounds.
  • You have polycystic ovary syndrome.
  • You have high triglycerides or low HDL (good) cholesterol.
  • You have had abnormal blood sugar tests in the past.
  • You have a history of heart disease.
  • You have any signs of a condition called insulin resistance (such as severe obesity or a skin condition called acanthosis nigricans).

 

How To Determine Whether You Have Diabetes, Prediabetes Or Neither?

Doctors can determine whether a patient has a normal metabolism, prediabetes or diabetes in one of three different ways – there are three possible tests:
The A1C test

  • at least 6.5% means diabetes
  • between 5.7% and 5.99% means prediabetes
  • less than 5.7% means normal

 

The FPG (fasting plasma glucose) test

  • at least 126 mg/dl means diabetes
  • between 100 mg/dl and 125.99 mg/dl means prediabetes
  • less than 100 mg/dl means normal

An abnormal reading following the FPG means the patient has impaired fasting glucose (IFG)
The OGTT (oral glucose tolerance test)

  • at least 200 mg/dl means diabetes
  • between 140 and 199.9 mg/dl means prediabetes
  • less than 140 mg/dl means normal

An abnormal reading following the OGTT means the patient has impaired glucose tolerance (IGT)
By identifying the signs of prediabetes before diabetes occurs, you can prevent type 2 diabetes altogether and lower your risk of complications associated with this condition, such as heart disease.Just 30 minutes of moderate physical activity a day coupled with a 7% weight loss produced almost a 60% reduction in diabetes.

 

Alzheimer’s Disease Awareness Initiative Part- I

With Alzheimer’s so much in the news and such a bleak picture associated with this disease , it is but natural to have apprehensions that whether you or your loved ones could be on the brink of the disease or some other form of dementia. This worry is compounded in people who have a history of Alzheimer’s in their families.

Don’t panic. Not all incidences of misplaced keys, inability to recall a name, forgetfulness to pay a bill on time mean that you have Alzheimer’s diseases. Stress can be a huge culprit when it comes to memory problems, as can medications, infections and sleep deprivation. So it’s important to take a realistic knowledge about this disease.

Alzheimer’s disease (AD) is a thief which slowly and stealthily steals and erases the memories. Therefore caring for someone throughout the stages of AD is an arduous task and can leave caregivers feeling powerless and frustrated. Understanding how Alzheimer’s affects the brain can help caregivers know more about what to expect as their loved one progresses through the disease, and how to prepare for that progression. And more important is the fact that armed with this knowledge, they are in a much better position to take care of the patient. Reducing the amount of surprise makes care giving less stressful.

Through a series of articles on AD, we have made a sincere attempt to spread awareness about this disease.

1. Is Memory Loss A Normal Process Of Aging?

Answer: Slowing down of memory is a common occurrence with aging. As people age, it’s normal to have occasional memory problems, such as forgetting the name of a person you’ve recently met. However, these forgotten thoughts return with some delay. This is not memory loss, it is aging.Memory loss is a condition wherein a person entirely forgets important information such as a loved one’s name, route to his home, etc. This sort of a memory loss is not normal and may be a sign of Alzheimer’s disease; it needs immediate attention. If you or someone has memory problems or other problems with thinking and learning that concern you, contact a physician.

2. Is Alzheimer’s Disease An Old Person’s Disease?

Answer: Age is the strongest known risk factor for Alzheimer’s disease. But this does not mean that most people develop the disease as they age. Most do not. Alzheimer’s can strike people in their 30s, 40s and even 50s. This is called younger-onset Alzheimer’s. What’s most important to understand is that Alzheimer’s disease is not a normal part of aging.

3. What Exactly Happens In Alzheimer’s Disease?

 

Answer: Alzheimer’s disease is “a progressive, degenerative disorder that attacks the brain’s nerve cells, or neurons, resulting in loss of memory, thinking and language skills, and behavioral changes.”

4. Do Patients Die Of Alzheimer’s Disease?

Answer: Alzheimer’s disease slowly affects and kills the brain cells. This results in not only loss of memory but along with memory, the body forgets how to perform vital functions such as movement, eating, etc. This will eventually lead to the death of the individual.

5. Do Women Have A Greater Risk Of Developing Alzheimer’s Disease?

Answer: Per se there is no direct correlation between being a women and the risk of getting Alzheimer’s disease. However as age is the most important known risk factor for Alzheimer’s disease, the longer people live, the more likely they are to develop the disease. Since various studies show that women in general have longer longevity men, they may have a higher lifetime risk of developing Alzheimer’s disease.

6. Why Is An Early Diagnosis Important?

Answer: An early diagnosis of Alzheimer’s disease can increase the chance of potential benefits from approved medications. It also allows the person with AD to participate in health care, financial and legal decisions.

7. Is There Any Treatment For Alzheimer’s Disease?

Answer: There is currently no permanent cure for Alzheimer’s disease. For some people in the early to middle stages of the disease, new medications may provide limited cognitive symptom relief. As the symptoms and behaviour of such patients are not uniform and vary on case to case basis, behavioural symptom management is also very management .In addition to medicines, interventions like family education on care giving , counselling, modification of the environment and planned activities to suit the individual needs of the patient .are of paramount importance.

8. Can A Healthy Life Style (Exercise, Diet, And Mental Activities) Prevent Alzheimer’s Disease?

Answer: Many people believe that exercise and mental activity can help prevent Alzheimer’s. However the scientific evidence is unclear on this issue. A few studies have, indeed, found that eating a healthy diet, engaging in aerobic exercise on a regular basis, staying socially active, and keeping your mind engaged with games and puzzles are linked to lower odds of getting Alzheimer’s. Studies also suggest that these same lifestyle changes may reduce the progression of symptoms for people who already have Alzheimer’s disease.

9. What Are The Common Symptoms/Warning Signs Of Alzheimer’s Disease?

Answer: Symptoms/warning signs of AD may include the following:

  • memory loss or unexplained confusion that interferes with daily activities
  • difficulty in performing familiar tasks and chores
  • problems speaking, understanding, reading or writing
  • forgetting words or substituting inappropriate words
  • disorientation to time and place (e.g., getting lost in familiar surroundings)
  • poor or decreased judgment (e.g., wearing a winter coat on a hot summer day)
  • problems with abstract thinking (e.g., difficulty balancing a check book)
  • misplacing things in inappropriate places (e.g., putting the iron in the freezer)
  • changes in mood or behaviour (e.g., rapid mood swings for no apparent reason or cursing)
  • drastic changes in personality (e.g., suspiciousness)
  • lack of interest and involvement in usual activities

· Asking the same question over and over again.

· Repeating the same story, word for word, again and again.

· Forgetting how to cook, or how to make repairs, or how to play cards – activities that were previously done with ease and regularity.

· Neglecting to bathe, or wearing the same clothes over and over again, while insisting that they have taken a bath or that their clothes are still clean.

10. Can You Prevent Alzheimer’s Disease?

Answer: No prophylactic treatment or intervention can prevent Alzheimer’s disease. Researchers are learning, however, that lifestyle choices that keep mind and body fit may help lower the risk of developing the disease. These choices include being physically active; eating healthy foods including fresh fruits, vegetables and fish; keeping your brain challenged; reducing stress, keeping an eye on your blood pressure, blood sugar and cholesterol levels; avoiding traumatic brain injury; and keeping socially active.

Some people believe that avoiding aluminum in cooking utensils (pots and pans) reduces your risk of developing Alzheimer’s disease. Although there’s been a lot research into the connection between aluminum and Alzheimer’s disease, there’s no definite evidence to show a link. The disease appears to develop when the different risk factors combine. This includes older age, genetics, lifestyle and environmental factors. These factors overwhelm the natural capacity of the brain to deal with them.

Warning bell! for Alzheimer’s disease.

Knowing helps in early detection!

1. Memory Loss

It is quite normal to have occasional memory lapses. But memory loss that disrupts daily life is a consistent symptom associated with AD. Frequent forgetfulness and unexplainable confusion at workplace/home should bother you.

 

One of the most common signs in the early stages, is forgetting recently learned information. Others common memory lapses are-

· Forgetting important dates or events.

· Asking for the same information over and over.

· Relying on memory aides (e.g., reminder notes or electronic devices) or family members for things they used to handle on their own.

· Forgetting names or appointments.

 

2. Misplacing Things

A person with Alzheimer’s disease may put things in unusual or inappropriate places like putting the iron in a freezer/watch in a sugar pot, mobile in the dustbin. And then totally forgetting how these got there. Sometimes, they may accuse others of stealing. This may occur more frequently over time. The most typical sign is misplacing and forgetting items frequently items like a pair of glasses or the remote control.

 

3. Difficulty Completing Familiar Tasks At Home, At Work Or At Leisure.

People with AD often prepare a meal and then forget to serve it. They may even forget that they have prepared the meal. They often find it hard to complete daily tasks. Sometimes, people may have trouble driving to a familiar location or remembering the rules of a favorite game or how to operate a remote.

 

 

4. Loss Of Initiative

A Person who had previously been an energetic guy, suddenly becomes uninterested and uninvolved in many or all of his daily activities or other pursuits. He/she withdraws from work or social activities and remove themselves from hobbies and sports. They may feel weary of work, family and social obligations.

 

5. Changes In Mood And Personality.

The mood and personalities of people with Alzheimer’s can change dramatically or slowly over a period of time. An easy going and cheerful person can become confused, suspicious, depressed, fearful or anxious. They may be easily upset at home, at work, with friends or in places where they are out of their comfort zone. They may also exhibit extremes of mood swings frequently. They may be very happy one moment and very soon may become very sad and start crying.

6. Decreased Or Poor Judgment.

People with Alzheimer’s may experience changes in judgment or decision making. For example, they may use poor judgment when dealing with money, giving large amounts of money to online shopping. They may pay less attention to grooming or keeping themselves clean. For example, they dress inappropriately like wearing a three piece suit in a hot summer afternoon or going to a mall in his bathrobe.

 

7. Abstract Thinking Problems.

Suddenly or over a period of time a person with AD develop difficulty in planning or solving problems. They may have trouble following a familiar recipe or keeping track of monthly bills. They may have difficulty concentrating and take much longer to do things than they did before. They find difficulty in simple calculations, recognizing simple numbers etc.

 

8. Confusion/Disorientation With Time Or Place.

People with Alzheimer’s can gradually lose track of dates, seasons and the passage of time. They may fail to appreciate what time of the day it is. Sometimes they may forget where they are or how they got there. While going for a walk they may forget the street, their own house or may end up knocking at the wrong house.

 

9. Trouble Understanding Visual Images And Spatial Relationships.

For some people, having vision problems is a sign of Alzheimer’s. They may have difficulty reading, judging distance and determining color or contrast. In terms of perception, they may pass a mirror and think someone else is in the room. They may not recognize their own reflection.

 

10.Problems With Words While Speaking Or Writing.

People with Alzheimer’s may have trouble following or joining a conversation. They may stop in the middle of a conversation and have no idea how to continue or they may repeat themselves. They may struggle with finding the right word or call things by the wrong name (e.g., calling a watch a “hand clock”). They may find similar problems while writing.